Lila goes in for her Stem Cell Transplant next week. Before she can be admitted to the transplant unit at Duke, there are a few tests that she has to "pass". By a few, I mean a bazillion. This is an email of the schedule we have and will be following for two-ish weeks from the Bone Marrow Transplant Team nurse (names have been omitted to protect the privacy of people who probably don't give a crap whether their name is on here or not):
Friday January 2, 2009
9:30am Please check in at the Pediatric Blood and Marrow Transplant clinic located on the 4th floor of the Children’s Health Center. Lila will be checked in (height, weight, vital signs). We will draw some of the pre-transplant labs from Lila during this visit. She will also have a battery (nasal swab) to check for virus. A Pediatric Nurse Practitioner, will examine Lila and review her medical history with you.
Please take Lila to the 1st floor of the CHC to Pediatric Radiology for a chest x-ray.
Tuesday January 6, 2009
9:00am Please check Lila in on the 4th floor of the CHC. Lila will have her infusaport accessed for additional labs and will also be used for her GFR (kidney test) today.
9:30am Please check into the 1st floor of the CHC. Lila is scheduled for a glomerular filtration rate “GFR” (a kidney function test). This is done in the nuclear medicine section of radiology. There is no special “prep” for the GFR. It is a simple test where a small amount of dye (also referred to as a tracer) will be injected into Lila’s IV. Then, a tube of blood will be drawn at 1-hour and 3-hour intervals following the injection.
10:30am You are scheduled to meet with one of our Social Workers in the 4th floor CHC waiting area.
11:30am I will meet you (also in the 4th floor CHC waiting area) for a pre-transplant education session.
Wednesday January 7, 2009
8:15am Lila is scheduled for a CT scan of the brain, sinus, chest, abdomen, and pelvis. Please review specific instructions regarding nothing to eat or drink prior to the scan (enclosed). You will check in at Pediatric Radiology on level 1, CHC.
11:00am Please come to our administrative offices located at 1400 Morreene Rd. to meet with the following members of our team:
11:00am Meet with our Family Support Program
11:30am Meet with insurance coordinators
1:00pm Meet with me to review pre-transplant education material
Thursday January 8, 2009
8:45am Please check Lila in on the 4th floor of the CHC. Lila will need her height and weight checked before today’s appointments.
10:00am Please check Lila in on the 2nd floor of the CHC. Lila is scheduled for Crying Vital Capacities. This is a study of lung function. Lila will also need an EKG (Heart Study) done while on the 2nd floor.
11:00am Please check Lila in on the 2nd floor of the CHC. She is scheduled for a hearing test in the speech and hearing clinic.
12:00 Please check in at CHC level 3 for an appointment in pre-op screening clinic.
2:00pm Lila scheduled for an echocardiogram (heart study), done on the 2nd floor of the CHC. Directions are enclosed.
Friday January 9, 2009
TBA Lila is scheduled for a spinal tap, to be done in the treatment area suite on the 3rd floor of the CHC. This procedure is planned to be done with anesthesia. Please refer to the guidelines enclosed regarding nothing to eat or drink prior to the procedure.
I will meet with you to review transplant-related education materials.
Monday January 12, 2009
1:00pm We are scheduled to meet to review Lila’s results and review the plan for upcoming transplant, including consent forms. Please come to our administrative office located at 1400 Morreene Rd. in Durham.
Wednesday January 14, 2009
Lila is tentatively scheduled to have her double lumen central line placed in the operating room by one of the pediatric surgeons. We are planning to admit Lila from the recovery area to 5200 (bone marrow unit).