Thursday was the big day. I spent the morning running around getting prescriptions and making trips to the car with all of the stuff we have accumulated over the past four weeks. I had to be trained on Lila's feeding pump (as of right now she is getting 40mL per hour continuously pumped into her 24 hrs. a day) and the nurses had to make sure I knew how to draw her labs every morning, flush out her lines, and change the caps and dressing on her central line. I have done each of these things one time with a nurse present, so when they asked me if I was confident with the procedures, I of course said "sure. no problem." Just between you and me, I am totally nervous about it. If I change her cap and forget to clamp the line, do you know what will happen? Yes, that's right, blood will shoot out everywhere because her central line is a direct line into a vein in her chest. Aaaaahhh, this is going to be fun.
Finally, after many papers were signed, we were ready to make the big 5 minute trip to our apartment in Durham. The Doc says we will probably only have to stay for one week instead of two because, well, you know--Lila is awesome. So here it is, the much anticipated parade:
She was a little bit terrified of the parade because it really is just people yelling and throwing things at her.
Today was her first clinic appointment and everything looks great. She doesn't have to wear the big, hideous, green mask that she has on in the pictures. Mostly because they cover her entire face, eyes included-she wasn't keen on that. They said she was fine just to wear those cute little Mickey Mouse paper masks that she wore in the hospital. The clinic Dr. was amazed that she was only on 3 medications and a multi-vitamin. Most kids leave with a grocery sac of meds. All of her blood counts are good and she's so happy to be free from all the wires (well, all but one--stupid pump). She spent all day rolling around on the floor. Not really my idea of a good time, but she was more than content.
Oh and also, she says bear--her first official word.
The bear. Yes, it's just a head.